Hi Family and Friends,
Thank you all for joining us in the Fight Against Histiocytosis!
We are glad to return this year and hope that Luca will be healthy enough to join us in NYC. This past year has been full of ups and downs! Luca was diagnosed with PTLD - Post Transplant Lymphatic Disorder. He's had to have additional chemotherapy, proton therapy, had a G-tube placed and multiple admissions to CHOP. Through it all, he has continued to take ballroom dance lessons and comedy classes. We also have added a new member to our family. Zevon is a German Shepard/Golden Retriever puppy and absolutely loves Luca. We are so grateful for the continuous support of our family and friends throughout this journey. We are so blessed to have such a wonderful team at CHOP. The oncologists, surgeons, nurse practitioners and nurses at CHOP have walked this journey with us - every step of the way.
Please continue to pray for Luca and all of the children and adults that are diagnosed with HLH. Any amount that you can give is very appreciated and will be used to raise awareness and fund HLH research.
Liam’s Lighthouse Foundation
5818 Charlois Court | Colorado Springs, CO 80922-2226 USA
Liam's Lighthouse Foundation (LLF), a non-profit, tax-exempt organization, was established to create and provide educational material and awareness about Hemophagocytic Lymphohistiocytosis (HLH) including Histiocytic Disorders, and to distribute unbiased, factual information to physicians, hospitals, and the community regarding this disease. Our focus is also to bring families affected by HLH/Histiocytosis together and offer support through a variety of resources. We aim at raising much needed funds for continued education of physicians and research to develop safer and more effective treatment methods and ultimately a cure. LLF is also dedicated to bring awareness to the community about the importance of becoming a blood and bone marrow donor.