This will be the 3rd year the team is participating in the 5k and are excited to be joined by new team members! The goal of this team is to help raise funds towards research to find a cure.
#TeamGrumps was created in honor of my father, Russell Losaw, Sr, who was diagnosed with HLH (Hemophagocytic Lymphohistiocytosis) in July of 2015. After a short, painful, but courageous battle, Russell passed on November 12, 2015.
HLH is a rare disorder of the immune system that involves over-production and activation or normal infection-fighting cells called histiocytes and T cells. In contrast, often NK (natural killer) cell function is decreased. Decreased NK function is related to the consequence of genetic mutations which cause HLH. HLH is often referred to as either the “primary” form which is hereditary, or the “secondary” form associated with infections, viruses, autoimmune diseases, and malignancies (or cancers).
The rarer of the two types, “secondary”, is often diagnosed in older patients and is thought to be associated with lingering viral infections such as Epstein-Barr. This is what the doctors feel contributed to my father’s illness.
Over those 5 months, there were frequent trips and extended stays in the hospital. It is during that time, that I watched a once strong former Marine deteriorate to a frail shell of his former self. The disease affected so much of his body he became unable to simply get out of bed independently nor climb a flight of stairs. It tore me up inside, yet I got to be there for him and help make things a little easier.
It is for various reasons that I ask you to contribute any donation you can afford, so that one day families won’t have to endure the pain and heartache that accompanies HLH. Please help me try to make an impact for research to assist finding a cure.
Liam’s Lighthouse Foundation
5818 Charlois Court | Colorado Springs, CO 80922-2226 USA
Liam's Lighthouse Foundation (LLF), a non-profit, tax-exempt organization, was established to create and provide educational material and awareness about Hemophagocytic Lymphohistiocytosis (HLH) including Histiocytic Disorders, and to distribute unbiased, factual information to physicians, hospitals, and the community regarding this disease. Our focus is also to bring families affected by HLH/Histiocytosis together and offer support through a variety of resources. We aim at raising much needed funds for continued education of physicians and research to develop safer and more effective treatment methods and ultimately a cure. LLF is also dedicated to bring awareness to the community about the importance of becoming a blood and bone marrow donor.