To celebrate the life of our beloved Sloane Cameron Caffrey, we are partnering with Liam's Lighthouse Foundation to raise money in support of histiocytosis (HLH) research. Sloane brought so much joy to our family in her short time with us. Diagnosed with HLH at 3 months old, Sloane fought with everything she had against this awful disease, leaving us at 5 months old. 

In keeping her memory alive, we will do whatever we can to help in the fight against HLH, a disease that often goes misdiagnosed. Sloane had access to the best doctors and treatment out there, but little is understood about HLH. We continue to support those living with the disease - and are hopeful that some day in the near future, there will be a cure for this awful disease. 

We appreciate any support in our effort to make a difference. We'll be honoring Sloane at the 5K to Fight Histio in New York on July 21, 2019. Hope to see you there. 

Love, Mary and Sean

Liam's Lighthouse Foundation (LLF), a non-profit, tax-exempt organization, was established to create and provide educational material and awareness about Hemophagocytic Lymphohistiocytosis (HLH) including Histiocytic Disorders, and to distribute unbiased, factual information to physicians, hospitals, and the community regarding this disease. Our focus is also to bring families affected by HLH/Histiocytosis together and offer support through a variety of resources. We aim at raising much needed funds for continued education of physicians and research to develop safer and more effective treatment methods and ultimately a cure. LLF is also dedicated to bring awareness to the community about the importance of becoming a blood and bone marrow donor.