Madyson's story started in March 2020. She became extremely Ill. 3 pediatricians misdiagnosed/dismissed her symptoms. We were even told she was teething and sent us home. Finally on our 4th attempt at help, that doctor knew something was very wrong. She was sent for lab work and was hospitalized the following morning for high fevers, body rash, inflammation and extremely high blood counts. It was the scariest moment for our family. Multiple test were ran and we were not getting any answers. 5 days into her hospital stay the doctor mentioned a hematologist coming to talk to us about testing for HLH. None of us have ever heard of this. When the doctor explained what HLH is it left us all speechless. Once her bone marrow biopsy was done and confirmed diagnosis she needed to have a port placement and start chemotherapy and steroids immediately. The hardest thing a parent can go through is seeing their child become so sick and go through harsh treatment. She stayed 12 days in the hospital and then continued on out patient care. She has recently completed her full 24 weeks of treatment and is now in remission. These last 6 months have not been easy at all. Our little princess is a warrior and gives our whole family strength!

Due to the ongoing Coronavirus pandemic, we will run/walk VIRTUALLY in our Hometown of San Antonio to raise funds for ground-breaking research alongside Liam's Lighthouse Foundation, to increase awareness of a disease that all too often goes misdiagnosed, and provide support to each other as we fight Histiocytosis. What started out 10 years ago as 3 friends trying to support a grieving mother, who lost her 20 month old son to HLH, has grown larger and faster than any of us could have imagined. Every step taken and every dollar raised brings us closer to the ultimate finish line...A CURE! 

Please consider making a donation 
and joining a team today!

Liam's Lighthouse Foundation (LLF), a non-profit, tax-exempt organization, was established to create and provide educational material and awareness about Hemophagocytic Lymphohistiocytosis (HLH) including Histiocytic Disorders, and to distribute unbiased, factual information to physicians, hospitals, and the community regarding this disease. Our focus is also to bring families affected by HLH/Histiocytosis together and offer support through a variety of resources. We aim at raising much needed funds for continued education of physicians and research to develop safer and more effective treatment methods and ultimately a cure. LLF is also dedicated to bring awareness to the community about the importance of becoming a blood and bone marrow donor.