I am partnering with Lymphatic Education & Research Network (LE&RN) and raising money for 2019 DC Walk & Rally to Fight LE & LD.
We need to shed light on this epidemic that no one really talks about and that starts with supporting advocacy efforts through organizations like LE&RN. I used to think lymphedema was rare because of how few doctors knew about it and the lack of resources available. Over the years I’ve realized how prevalent it is. It’s estimated that more than 10 million Americans suffer from lymphedema — more than muscular dystrophy, multiple sclerosis, AIDS and Parkinson’s disease COMBINED.
I first started going to doctors with lymphedema symptoms in my left leg almost ten years ago. My stage 1 symptoms were not properly addressed by multiple doctors for years, simply because they themselves didn’t know much about it. There was little information available about what this diagnosis meant and like many other lymphedema patients I was overwhelmed by the thought of there being no cure. There was no follow up, help, guidance or assistance offered to me by the medical community at that time. I felt alone and helpless. No patient should have to go through that experience.
As frustrating as LE is, I’m hopeful and excited about the future. The limited medical research and understanding of the lymphatic system means there’s a huge opportunity for advancements and breakthroughs and this is only the beginning of awareness efforts. You can donate now and by hitting “Give Now” on the upper right.
I know there are tons of organizations in need, and I thank you for joining me!
- Jess Anson