Hi Friends and Family, I am partnering with Lymphatic Education & Research Network and raising money for 2019 MA Run/Walk to Fight LE & LD.
Some of you know that my mom had lymphedema, probably from adolescence, and was not diagnosed until her late 60s. She never received treatment and would also joke that she was 'fat'....her nanny arms...her nanny legs. For the past several years, I started to experience swelling and fluid retention in my right foot and leg. It would come and go and I didn't pay attention to the swelling until the swelling turned into pain. I self-diagnosed and, after a dismissive visit with my primary care physician, sought treatment from a Beth Israel team of doctors who confirmed the diagnosis after a number of tests. At that point in time, my right leg was 10% larger than my left. If left untreated, my leg would have continued to swell with fluid and the effects may not have ever been reversed. While I'm still often in pain, after 4 or so months of wearing a custom made compression leg sleeve (except to sleep), and using a compression pump daily for an hour, my right leg is back to a normal size. I've also participated in the Worldwide 2018 Patient Lymphedema Symposium held at Harvard Medical School and attend meetings with the Massachusetts Chapter Meeting of the Lymphatic Education & Research Network (LE&RN) to gain knowledge and support.
I'm walking because so many people have no idea what lymphedema is!! I sincerely appreciate your support for this fundraiser and my goal. You can donate now and by hitting “Give Now” on the upper right.
You can give with any major credit card and it only takes 30 seconds. I appreciate it so very much.