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#TeamNicky

HLH warrior Journey- rarely diagnosed disease Learn More

Hi Friends and Family, 

I was diagnosed with with HLH in March 2017. I got sick with flu like symptoms high fever enlarged liver and spleen sore throat runny nose and sore body. I had an high infection count and a very high ferritin count as well as low platelets and hemoglobin. Drs weren’t sure what was wrong with me after spending quite some time in icu the drs did a bone marrow test after testing me for almost every disease cancer and infection then found the HLH. Please help us raise funds for research into this rarely diagnosed disease and to create awareness as anybody can get HLH and the fatality rate is very high if not diagnosed in time.

I I sincerely appreciate your support for this fundraiser and my goal. You can donate now and by hitting “Give Now” on the upper right. You can give with any major credit card and it takes less than a minute. I appreciate it so much

Thank you for joining me in the Fight Against Histiocytosis!


Liam’s Lighthouse Foundation
EIN 27-1309152
5818 Charlois Court | Colorado Springs, CO 80922-2226 USA

www.LiamsLighthouse Foundation.orgwww.5KtoFightHistio.org

Liam's Lighthouse Foundation (LLF), a non-profit, tax-exempt organization, was established to create and provide educational material and awareness about Hemophagocytic Lymphohistiocytosis (HLH) including Histiocytic Disorders, and to distribute unbiased, factual information to physicians, hospitals, and the community regarding this disease. Our focus is also to bring families affected by HLH/Histiocytosis together and offer support through a variety of resources. We aim at raising much needed funds for continued education of physicians and research to develop safer and more effective treatment methods and ultimately a cure. LLF is also dedicated to bring awareness to the community about the importance of becoming a blood and bone marrow donor.

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